Reclaiming Our Futures Alliance’s Submission to the Long-Term Funding of Social Care Inquiry 


Reclaiming Our Futures Alliance’s Submission to the Long-Term Funding of Social Care Inquiry

ROFA has submitted our vision for a National Independent Living Support Service to replace the broken social care system to the Parliamentary inquiry into funding of social care.  The scope of the inquiry is limited and the questions in the consultation geared to preserving status quo and resolving funding and market failings – or if you are cynical ‘moving deckchairs on the Titanic’.  We presented our NILSS vision which can be found on the ROFA website:




Independent Living – Deaf & Disabled People’s Experiences During COVID-19

·       Saturday 15 May 2021

·       11am to 1pm

We are hosting an online event about Deaf and Disabled people’s experiences during COVID-19.  There will be British Sign Language interpreters and live captions.  This event is a chance for Deaf and Disabled people to have their say on what has happened to them during the Covid-19 pandemic, and to learn about other people’s experiences.

With presenters including:

Book your place at:




UN Consultation “From isolation, invisibility and segregation into inclusion of Disabled people in the community. Identifying and overcoming barriers to the successful process of deinstitutionalization.”


For many years, many Disabled people have had no choice and control over their lives. People thought Disabled people were not able to live independently in a place they choose. They thought that persons with disabilities needed medical treatment in organizations or institutions to correct or cure diseases and physical or intellectual impairments. So countries spent money on special services, isolated from the community, instead of providing support to live in the community. To this day, many Disabled people have no choice but to live in institutions, special schools, hospitals, group homes, mental health or psychiatric facilities, residential care facilities, prisons, etc. Many have to live in the family home, or are not allowed to leave the family home even though they are adults and want to live independently. They depend on other persons and have little freedom.

The Convention states that every Disabled person has the right to live independently and be included in the community. All Disabled people have this right, whoever they are and wherever they live. It guarantees them freedom, choice and control over the decisions that affect their lives. This right protects the inherent dignity, autonomy and independence of Disabled people and secures their full and effective participation and inclusion in society. The Committee wrote a document called General Comment to explain what independent living and being included in the community means. The Committee said: “Social exclusion also engenders stigma, segregation and discrimination, which can lead to violence, exploitation and abuse in addition to negative stereotypes that feed into a cycle of marginalization of persons with disabilities.”

What is the purpose of this consultation?

The COVID-19 pandemic has made things worse. There are greater inequalities. The consultation is a chance for persons with disabilities to share their experiences and ideas on how to deal with the current situation and the risks persons with disabilities face. In addition, they can express their opinions and ideas on how to change the situation. It is also a chance to share good practices from their region so that persons with disabilities can be included in the community.

The Committee will use the information from the consultation to prepare a document called draft Guidelines on Deinstitutionalization, including in emergencies. The document will provide guidance to countries to put the Convention on the Rights of Persons with Disabilities into practice, especially the right to living independently and being included in the community (article 19), the Committee’s General comment No. 5 (2017) on living independently and being included in the community and its Guidelines on liberty and security of the person (2015).

How I can register?

Please send an email to Write Regional consultation European Union, Western Europe, and other States in the subject of the email.

In your email, please tell us:

1.  The full name of the person from your organization that will speak at the consultation;

2.  The name of your organization;

3.  The country where the organization is from or where it works.


Attach to the email the statement you want to issue during the consultation. Please only send documents in Word format. Your statement has to be 520 words or less (double-spaced, 12 font). Your statements should be in English.





Scrap social care charging


We are calling on the Government to abolish social care charging. Please sign our petition demanding Matt Hancock, Secretary of State for Health and Social Care, scraps social care charging.


Sign the petition here.

Why is this important?

Thousands of disabled and older people throughout the Covid pandemic have experienced social care cuts and increases in care charging. Families are struggling to make ends meet and pay the week’s shopping bill. In some cases, people have to make an unenviable choice of heating the home or putting food on the table. Others are being pushed into debt.

Unlike the NHS, social care support is not free, and even people with a meagre income, including those on means-tested benefits, have to pay towards social care. Good social care support helps Disabled and older people to live fulfilling lives with choice, control and dignity. Good social care means people are clean, safe, have food to put on the table, have meaningful relationships, take part in their community, and enjoy life.

We are, therefore, calling on the government to abolish social care charging as part of social care reform. And in the interim, we call on the government to ensure Disabled and older people are not forced to pay for social care out of their benefits.

A Tax on Disability

Watch our powerful new film ‘A Tax on Disability’ explaining why social care charges are unjust and unfair and undermine Disabled people’s choice, control and right to independent living.

Watch the film here:




StopSIM Coalition Consensus Statement relating to The High Intensity Network (HIN) and Serenity Integrating Mentoring (SIM), 21/04/21

We are a coalition of mental health service users and allies who have grave concerns about the rapid, widespread rollout of the High Intensity Network’s ‘Serenity Integrated Mentoring’ (SIM) intervention across NHS England. The intervention is designed for people who have not committed a crime, but are in contact with mental health services, are frequently at high risk of suicide and self harm and are deemed “high intensity users” of emergency services.  Key intervention components include a co-ordinated withholding of potentially life saving treatment by multiple agencies (A&E, mental health, ambulance and police services) and, using SIM’s own words, the “coercive” approach of a police officer as an interventionist.

We call on NHS England to:

1.  Halt the rollout and delivery of SIM with immediate effect, as well as interventions operating under a different name, which are associated with the High Intensity Network (HIN).

2.  Conduct an independent review and evaluation of SIM in regards to its evidence base, safety, legality, ethics, governance and acceptability to service users.

3.  Respond to this statement within 7 days to communicate the actions taken by NHS England. Communications should be directed to

Our concerns about SIM relate to its evidence, legality (including GDPR, Human Rights and Safeguarding), aims, governance and ethics. Interventions or service models operating using SIM principles may be known by alternative names, however, for brevity, this statement equally applies to those services, interventions and models.

This is a preliminary consensus statement. We have been researching SIM and the HIN for a number of weeks in preparation for the release of a detailed and referenced statement.  However, we are releasing this brief statement since becoming aware that, due to the hard and concerted effort of service users, survivors and allies over many weeks – and in some instances, years – that high level conversations have been prompted.  We felt it was critical to make our position public as soon as possible. A longer version of this statement, with citations, is shortly forthcoming.

We expect to be involved in any high level conversations concerning the High Intensity Network and SIM as a coalition of service users and allies.  We can be contacted by email at or via Twitter DM: @StopSIMMH. We will be publishing further updates on our Twitter account.

In solidarity with survivors, service users and allies who have worked tirelessly to shine a light on injustice,

The #StopSim Coalition


Join  ROFA

ROFA membership is open to individual disabled people living in England and to all DPOs, disabled peoples groups or networks in England who are:

  • At least 75% controlled by Disabled people e.g. 75% or more of Management Committee / Boards or Steering groups are made up of Disabled people and;
  • sign up to the social model of disability and support the principles & values of ROFA as detailed in this Term of Reference

ROFA also has an affiliate membership for allies of ROFA – both organisations and individuals can be affiliate members. Affiliate members do not have voting rights.

Membership is free for individual disabled people and non-funded DPOs.

Join online today

For general enquiries, email 

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