The Stop People with a Learning Disability Dying Too Young Group is a group of self advocates and family carers from the North East who work with Inclusion North on the Learning Disability Mortality Review Programme, known as LeDeR.
Over the past few months we have been working with a journalist called George Julian.
She uses Twitter to make sure people know what happens at the inquest of a person with a learning disability who has died too young. Some of the inquests she has Tweeted from include Connor Sparrowhawk and Danny Tozer.
Our group asked why less people with a learning disability have their death reported to a coroner than other people. The group realised that they didn’t really know what a coroner did or what an inquest was. So they set out to find the answer.
George offered to work with us, and we have produced some Easy Read resources to help people with a learning disability and their families understand what a Coroner does, what an inquest is and why less people with a learning disability have their deaths reported to a coroner than other people.
The resources include two Easy Read leaflets (attached), and two short videos. The resources can all be found here https://bit.ly/3siaa0k
The group are asking for Coroners, the Police, the Care Quality Commission, health and social care, human rights organisations, NHS England and their MPs to take action to make sure that every death that should be reported to a coroner is.
Please take a look at the group’s work.
Please send it to anyone you think should see it.
And please contact us if we can help you in your work so that together we can stop people with a learning disability dying too young.